Rare Disease Day: Shining a Light on Rare Conditions with MedicAlert


19 February 2025 MedicAlert

As Rare Disease Day approaches, it is a timely reminder that there are millions of people worldwide living with various rare conditions. Rare diseases may be uncommon individually but collectively, they affect 1 in 17 people. 

MedicAlert - Making the rare, understood

What Is Rare Disease Day?

Rare Disease Day is an international campaign dedicated to raising awareness for rare conditions and improving access to care and resources. It highlights the unique challenges faced by individuals with rare diseases, including delayed diagnoses, limited treatment options and the need for personalised care.

The Importance of Storing Medical Information

When living with a rare condition, emergencies can be particularly daunting. Many rare diseases require specific treatments or precautions that may not be immediately apparent to first responders. This is where MedicAlert’s services come in:

  • Comprehensive Health Profiles: MedicAlert allows you to store detailed information about your rare condition, medications, allergies and any other critical health details.
  • 24/7 Access: Our emergency helpline provides healthcare professionals with access to your medical profile anytime, anywhere.
  • Customised Medical IDs: Our IDs are engraved with essential details, ensuring that first responders have vital information at a glance.
  • Peace of Mind: Knowing that your rare condition is documented and accessible reduces anxiety for both you and your loved ones.

How You Can Support Rare Disease Awareness

Here are a few ways to get involved:

  • Spread Awareness: Share stories and resources on social media using #RareDiseaseDay. Educating others can help build understanding and advocacy. Don’t forget to tag us!
  • Support Organisations: Donate to, or volunteer with charities that focus on rare diseases and medical research.
  • Encourage Preparedness: Remind loved ones with rare conditions about the importance of having their medical information readily available.

Living with a rare condition comes with unique challenges but you don’t have to face them alone. We are here to support you with tools that make managing your health easier and safer. Whether you are at home or travelling, we are always at your side.

If you’re sharing your Rare Disease Day stories or advocacy efforts, tag us on social media - we would love to celebrate your journey and raise awareness together.

We work with Annabelle’s Challenge to support people living with vEDs

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We work with Newcastle Upon Tyne Hospitals NHS Foundation Trust to support people living with aHUS

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