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Many of our members live with rare and multiple conditions that are not visible or obvious to those around them.
Find out more about our members by reading their stories below.
If you would like to read stories and other information about a particular illness group, you can use the search function found at the top of our website!
Anaphylaxis to peanuts & allergies
Duplex kidneys & severe asthma
Coeliac Disease
Young-onset dementia
Hodgkin’s Lymphoma & Pacemaker
Conn's Syndrome & Hypertension
Epilepsy
Brugada Syndrome
Complex Heart Disease
Autism, Non-Verbal
T1 Diabetes, Allergies
Dementia
Mucous Membrane Pemphigoid
Vascular EDS
Bipolar Disorder
T1 Diabetes
Severe Haemophilia B
Haemophilia & Penicillin Allergy
Multiple Severe Allergies
Long QT Syndrome
Epilepsy & Penicillin Allergy
Angina
Diamond Blackfan Anaemia
Anaesthetic Allergy
Food Allergies
Asthma, Lupus & ITP
Chronic Neuropathic Nerve Damage
Haemophilia & Risk of Anaphylaxis
Asthma, Diabetes & COPD
Vascular Ehlers-Danlos Syndrome
Nut Allergy
Risk of Anaphylaxis
Antibiotic Allergy & Hypertension
Severe Allergies
Severe Nut Allergy
Alzheimer's & Hypertension
Fibromyalgia, Blindness, PNES
Addison's Disease
Multiple Severe Allergies & Eczema
Tetralogy of Fallot, Eczema & Tree Nut Allergy
Degenerative Arthritis, Severe Allergies, Antiphospholipid Syndrome
Riley Day Syndrome, T2 Diabetes & Blindness
TINU, VP shunt, Connective Tissue Disease, Chiari 1 & CKD
Dilated Cardiomyopathy, Implanted Automatic Cardioverter Defibrillator
Penicillin Allergy, Cardiac Artery Stents, Rare Blood Group
Atrial Fibrillation (AF), Asthma, Multiple Allergies, Sleep Apnoea, Vertigo
Functional Movement Disorder, Costochondritis, T2 Diabetes & Severe Anxiety Disorder
Chronic Asthma, Bladder Cancer, COPD, Hypothyroidism, Arthritis & Mobility Problems
Asthma, Bronchiectasis, Rheumatoid Arthritis, Melanoma, Adrenal Insufficiency
T2 Diabetes & Epilepsy
Read more
Haemophilia
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